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It's sunny. I saw a field full of robins. It being March, tomorrow the field will be filled with snow.

The oldest member of the family has died. This person had endured a difficult childhood and a great disappointment as a young adult. I think the disappointment never left. Still, there were some happier times and the death was quick and safe and with little suffering.

I'm not sure this person ever got to the point of "Things didn't turn out as I had hoped and I am okay anyway." Does anyone's life turn out as they had hoped? Perhaps?

Now that I am old and unwell I spend time doing nothing at all. Plenty of time to ruminate on how my life turned out, which was, of course, not as I had hoped it would. I have a lot of grief, a lot of uncomfortable feelings. When I try to discuss this with anyone, people try to talk me out of what I feel.

I don't feel heard. I think I need to meet someone old and ill who might be able to relate to me.

I spent a lot of time learning to 'behave,' to be polite, to fit in, to hide. It allowed me to pass for normal, but evidently it didn't work as well as I thought it did. What I thought was acceptance was often just being tolerated. I wish I had been able to be weirder, to be myself, to protect myself without having to focus on pleasing others so much. Now that I've moved to this country of impairment by illness, I want to find a way to be okay with myself and my situation. I want to be in reality. I want to not be distracted by people who don't actually care about me.

I finally saw an oral surgeon. He told me exactly what my dentist and the endodontist told me: there was a possibility I would need a procedure or that I would need my tooth removed. He saw no reason to do either at this point. If pain increases, I should return.

I won't be returning to his office though. Most of the staff seemed lifeless and unfriendly. The vibe of the office was alienating . . . deadening. My medical history was reviewed and I discussed being immunocompromised, but still I had to ask the assistant to wear the mask that she had in her hand. The dentist wore a mask - a loosely fitting surgical mask that he pulled off every time he spoke. What a ****.

It's exhausting to be ill and it's exhausting to have to constantly explain the vulnerabilities of illness and to have to request that people do the well known and simple actions that provide some protection.

I watched CAMPING VIBES on Viki and laughed again and again.

Today's perfume: Ambre Superfluide from the sample set by Les Eaux Primoriales. There are nine samples and only one that I dislike. (Couleur Primaire which smells exactly like laundry detergent.)
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There are a number of songs that make me cry every time I hear them. One is 'Bring Me Sunshine.' I like it, but I imagine it performed as a slow, sad song, with a sparse arrangement, as if the singer was painfully remembering past happiness. I try to hear it as present happiness, but it always seems full of sorrow.


For many, many years I went once a week to a knitting group, hoping to find some friends. I recently decided to stop going. This is mostly to do with protecting myself, since my immune system is wonky and I take meds that make it lazy, but it also has to do with recognizing that even after all this time, they've remained acquaintances, not friends. It took me a long time to realize my expectations of them were unrealistic. I have felt sad and disappointed and sometimes resentful and sometimes foolish. Today I'm feeling relief, which makes me think this is a good decision.

I'm going to find something special to do once a week, on the day that group meets. I might stay home or leave the house; either way I want to do something out of the ordinary, as a distraction, so I don't dwell on things I have no control over.


Today's nature sightings: 3 hawks, an eagle's nest, a tufted titmouse, a nuthatch. And sunshine. Lots of sunshine.

Slow Steps

Feb. 23rd, 2024 08:56 pm
house_wren: glass birdie (Default)
Spring things are happening in February, which is weird. Today I saw ribbons of geese flying northward and a pair of swans in the backwater of the river. The willow trees are showing a hint of green. The cats were catching flies on the porch.

Sunday marks three years since I suddenly became ill. I had a variety of symptoms that appeared all at once. I was eventually diagnosed with trigeminal neuralgia and also seropositive rheumatoid arthritis. I am never not exhausted, play whack-a-mole with pain everyday, and often cannot use my right hand.

I have finished organizing my art supplies and have also a carton of things to give away. This is satisfying.

Next project: getting rid of fabric. I don't have a lot, but I have more than I will use.

Still laughing over "I Live Alone" (Korean tv show on Viki.)

Full moon tomorrow.

enduring

Feb. 15th, 2024 09:33 pm
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Reading journals on Dreamwidth is comforting. I like the glimpses into someone's day; it helps me see the importance of the ordinary and helps me value my life as it is (rather than wanting it to be different.) So, thank you, everyone.

In a similar way, the book I'm reading (DAILY RITUALS: HOW ARTISTS WORK, edited and with text by Mason Curry) is comforting. The author has collected information on how 161 writers, painters, composers, scientists (etc) got their work done. Some kept strict schedules, some procrastinated, some drank, some worked 18 hours a day. It doesn't matter how you work is what I take from it. All the advice about the 'right' way to approach creating something, the advice that is sold to people who want to write or paint - it doesn't matter. There's no right way. Do it whatever way you can. Or not. Don't do anything. That's okay too.

All this made me think of the advice, "Just be yourself" which I never heard without quickly being told "Not like that." Ha.

Today I went to the endodontist for a problem with my tooth that the dentist could not fix. The endodontist has referred me to the oral surgeon. Oh. Great. Something...blah blah...the root...the bone...cutting...blah blah...inflammation.... Yikes.

On the bright side, even though I was told today's visit would cost me $200, they did not charge me anything. That is excellent. Now I'm working on accepting that I will have something to endure at the oral surgeon's which may or may not save my tooth. I can't avoid this.

On the way home the sun was low in the sky and was hitting the ice on the trees, making them look like beads. Also saw four bald eagles feasting on dead deer.

Last week there was a dead dear on our property. It took about 4 days for it to be cleaned up. The crows would sit in the trees watching the eagles feast, and as soon as the eagles left, the crows got to eat.

I've been reading McMansionHell.com written by Kate Wagner and it clears my mind. It's so good. I scrolled all the way to the bottom to find her first entry so I could read it in chronological order. Sometimes it makes me laugh out loud. Today I was early for my appointment, so I spent 30 minutes driving around the development by the golf course checking out the McMansions. I could see so many of the features Kate Wagner describes: lawyer foyers, nubs, multiple types of siding, fake columns, huge garages, etc. The best thing, though, was on the drive home, which is about 50 miles through the countryside, I had a new perspective on all the small, 'regular' houses. I could notice the features which seem so familiar as to be unimportant, but that are actually demonstrating good design and architectural principles.

Also today: I saw the crescent moon, which even after seeing it for all these years, still feels like a lucky token.

rest nest

Feb. 6th, 2024 10:57 pm
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The oldest member of the family, who has dementia, has fallen and is now in the ER, waiting for a room in the hospital. Possible broken hip.... I can hardly bear to think about this.

I had a painless blood draw today and so far the results are all in the normal range. (Must be the only normal thing about me. ha.)

It's so warm (for February) that I've opened the window a crack to get some fresh air and listen to the coyotes.

There is another beaver dam in the neighborhood; this makes three.

Bald eagles are nesting in a tree by the river.
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Because I'm always resting now, I am able to notice what I'm thinking. I see patterns in my thinking that repeatedly led me to rush into action fueled only by enthusiasm. I'm glad to not do this now.

When I was younger, I thought I had a lot of self-awareness. Ha ha very funny. In retrospect, I can see that I was deluded.

I'm living the life of an old cat. I move slowly. I curl up in my bed. I'm cranky when I'm in pain. I envy those who have people who will distract them from illness.

I'm going through my art supplies. I've decided to keep only what will fit in my favorite storage trolley. At the moment, the art room is a monument to chaos - everything is spread out, on the table, the floor, the daybed. I am looking forward to having order restored and a feeling of accomplishment.

More frustrating medical things this week. I do everything I can to care for myself but I cannot prevent biology from doing what it wants to do.

Only Connect is over, but Great British Menu has returned. Hurrah!
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It's wicked witch weather - the snow is disappearing. Every day has been foggy. I look forward to having sunshine again.

This past year I kept track of expenses with pencil and paper instead of the computer spreadsheet. It was surprisingly easy and quick.

I only need one more piece of information and I will have everything ready for preparing the taxes.

My art room is in chaos as I sort through my belongings. Today I looked at some calligraphy reference material; I boxed some and I discarded some.

It's hard to focus when things are so messy. I have to pick one task to do and ignore everything else.

Today I was in pain and spent a lot of the day in bed.

Perfume today was Room 1015's Cherry Punk. No one is around so I can wear as much as I like.

I've been sick for almost three years. It still feels new, as if it has been three weeks.

I feel a great sadness. I feel homesick. Not for an actual place, but for a feeling of belonging.

snowed in

Jan. 11th, 2024 03:23 pm
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After the storm, the man that plows the drive worked all night & all day, and he was here late, near the end of his route. That's fine--one of the pleasures of being retired is not needing to leave the house. Tonight is another snowstorm.

Snow is clinging to the tall stem of a prairie plant, making it look like a pussy-willow.

I read some news. Then I felt afraid.

With some help, I sorted through shelves in the art room and now have a box of shuttles and sley hooks and heddles to give to one friend, and a carton of colored paper and card stock to give to another.

A few days ago, an owl sat on the bluebird house for almost an hour. The woodpeckers that come to the suet feeder flew near the owl again and again; the owl didn't seem to notice and the woodpeckers didn't seem to care. Eventually the local police--the crows--came by and they chased the owl down into the woods. "Nothing to see here; move along." Caw! Caw!

Neighbors got to see three beavers at the newest beaver dam which is about a mile down the gravel road from my house.

I finally got a full night of rest. I slept in the Swedish rocker. It's counterintuitive that this would work...a hard wooden chair. I've tried a soft bed, a hard bed, sitting up in the love seat and then in the used-to-be-super-comfortable chaise lounge; in all cases my neck and shoulder were too pained to let me sleep. In theory, I will get better if I do some particular exercises. So far I can only do a few repetitions at a time before the pain starts.

Rewatching The Fiery Priest (2019 k-drama) and enjoying it. There is a second series coming; it was announced on the SBS awards show. I always enjoy seeing Lee Ha-Nee.

This morning there was sunshine for a short while. Everything sparkled.
house_wren: glass birdie (Default)
On New Year's Eve my neighbors had a bonfire with just a few friends. It was windy, but the fire pit was a bit off the top of the hill and so the fire behaved well. I wore my old coat. It's washable, but I'm enjoying the smoky scent it has now.

I went to orthopedics about my shoulder. Had xrays. Turns out, my shoulder is not the source of the constant pain that I'm having -- hurrah for that! The problem is (possibly) very, very tight muscles in my neck and upper back. I have a plan for self care and a referral to PT for when I want to go. If it's still not better, I have a referral to another speciality, fancy scans, etc.

Today for lunch we had a big bowl of berries topped with coffee gelato and shaved chocolate and chopped salty nuts and accompanied with amaretti cookies. Because we are adults.

For the first time, I watched lots of end-of-the-year k-drama awards on Viki. I don't know much about them, but they are different from shows like the BAFTAs or EMMYs in various ways. For example, each broadcaster does their own program. It's more an in-house promotion than a national competition perhaps. The clothes worn were beautiful, and not meant to shock or titillate. The short speeches the winners gave were full of 'thank you' comments, as expected, and many spoke of wanting to be a better actor. I generally dislike and avoid award shows, but I enjoyed these.

No snow. Just grey days. The drought will continue.

doldrums

Dec. 19th, 2023 09:17 am
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1. Relatives took a very old family member who has dementia out to a restaurant and refused to take her to the restroom when she asked. So of course she peed in her pants. WHAT IS WRONG WITH PEOPLE?!!!

2. Big, expensive repairs happening with the heating system today. The workers are wearing masks and I appreciate that a lot.

3. Short winter days mean I won't miss the sunrise; today it was colorful.

4. I want to be making things, but my hands only want rest or ice or warm water. Making things has always been how I renew myself. Not making things leaves me bored.
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When I was young, being old sounded awful. I couldn't imagine there would be anything worthwhile about it. I suppose I thought all old people sat home, drank too much and watched tv because that's what my parents did. Ha!
Eventually I met people who were old and who had interesting things to do and say. They were a joy.
Now I'm on the waiting list for a senior housing duplex. I don't know when it will happen, but I'll be leaving my beloved home in the country where I've lived for 15 years. I could stay here if I was not chronically ill or if I had family or if I didn't have unmedicated ADHD, but in my situation, living here any longer is too much for me.
Plus, the house has reached the Age of Breaking. So many repairs this year: cooktop, kitchen fan, microwave, washing machine, water heater, shower hardware and the biggie: heat pump. Heat pumps are really expensive! Yikes.
I hope to focus on positive things and not grieve too much. I try to imagine how good it will feel to be in town, where I can walk to the post office and the coffee shop and the library. I hope my new home will feel cozy and comforting (not tiny and claustrophobic.)
Downsizing is good. I had to clean out my parent's House of Hoarding, and it was such a crushing responsibility, that I am determined not to put the executor of my estate through anything similar.
Today 7 boxes of books left my care and went to the local library. That felt good.
I can hear coyotes right now. Sometimes they sound like sirens, but in 15 years I've heard only 3 sirens out here. In town, it will be sirens not coyotes.
I saw a shooting star tonight, falling beneath Orion.
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I feel so grateful for my weekly zoom group for rheumatic disease patients. I always feel lifted up by it. Which is saying a lot, since we are all in pain, on meds, getting gaslit by medical staff, etc etc etc.

The therapist I found has worked out. I met her in person a few times and now we can meet by phone, which makes it manageable. I am still filled with grief, but because she listened to me, I feel better. I've been able to use my imagination to help comfort myself and I've made some decisions about the future.

It was sunny today and there was snow on the ground, so it was gloriously bright.

I'm trying to watch HOTEL DEL LUNA, written by the Hong sisters, and I find it confusing even when I read the recaps on Dramabeans. I don't care about any character so perhaps I'm not paying enough attention. This is in marked contrast to how I feel about their show MASTER'S SUN, which I love and watch over and over and over. Obsessed by it.

Mostly I use Viki, but I also have Netflix. Netflix says I must upgrade the operating system on my 2 year old laptop in order to watch some shows. Not all shows, just some. I don't understand this. I hate updating my computer; it always causes problems.

I'm enjoying reading posts of people in my circle on Dreamwidth. I miss you when you are quiet.
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Once a week, on Sunday night, I take a medication that makes me even more exhausted than I usually am. I fight this; I try to force myself to get up. But this week I chose to stay in bed all day Monday and Tuesday, napping, reading, & watching k-dramas. I don't know if all that resting is why today I have been able to do the chores I do daily (clean the cat litter, take out the garbage & wash dishes) AND ALSO sweep the stoop, vacuum the hallway, mop the entryway, do laundry and sort through the china cabinet to choose what to give away. Wow.

Tomorrow I find out if all that activity was too much.

I have a new bottle of perfume, Ummagumma by Fzotic, and am enjoying complete solitude, so I have doused myself with scent. Yum.
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Every week I seem to develop another odd symptom. I looked up the latest one and realized what connects all of these annoyances is another auto-immune illness. This is not unusual; if you have one auto-immune condition, you are likely to get another.

I can see Orion falling down across the sky when I'm in bed. It's something I've seen all my life and I find it comforting. I remember the Pentangle song 'Jack Orion' every time I see it. The song is a based on a Child ballad. It starts out magically and descends into a terrible tale.

Jack Orion was as good a fiddler
As ever fiddled on a string
He could make young women mad
To his tune his fiddle would sing

He could fiddle the fish out of salt water
Or water from a marble stone
Or the milk out of a maiden's breast
Though baby she got none....
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My house still feels new, but it's 15 years old and things are breaking. Big things, such as the heat pump. Fortunately there is money in the bank to fix it, and there are rebates and tax credits to lessen the pain.

I am also breaking. I'm old and have various chronic ailments. I need to move to town. I've known this for a long time but today I understood how important and urgent it is to make this change now, while I have some control over my choices.

Tomorrow will be the start of lists, phone calls, decisions, etc. I don't like transitions. I'll be glad when the change is complete.
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I spent most of my life working to not be like my family. That is, to be a kind and compassionate person who listens well. I did manage this, but it took all my attention and also made me focus a lot on other people rather than myself.

Now I have a lot of solitude. I can accomplish things without interruption. I am not distracted by the opinions of others. I can eat what I like, when I like, sleep when I like, do everything according to my whim without concerning myself with whether or not what I'm doing makes someone else uncomfortable. It's lovely. (Although I would like a stronger friendship group.)

Lots of things I enjoyed doing were considered weird, so I either stopped doing them or did them so no one knew. They weren't bad things. I played freecell obsessively, back when each game had a number assigned to it, and I kept track of the ones I couldn't win. I typed a whole book into my laptop so I could always have it with me when I traveled. I ate the same foods everyday and I reread the same books over and over. (Someone once said, with a sneer, "Didn't you understand it the first time?" Jeez.)

I suppose the effort I put into trying to "pass for normal" kept me safer in some situations. But, really, I didn't pass all that well. I worked to be welcoming and friendly and was told I was TOO friendly. I was told I was too polite or too risk-averse or took too many risks. For a long time I thought I was an outsider because my childhood was full of moves from one place to another. Then I thought it was because of the alcoholism that ran in my family. Now I think it's because I have adhd and mostly I think it is because I am autistic.

Masking was my friend and now I am so glad to learn to stop doing it.

Ironic though, because now I am immunocompromised and so wear a physical mask whenever I am around people. Ha.
house_wren: glass birdie (Default)
First snow of the season today.

I felt anxious about the future.
I distracted myself by working on my perfume journal.
I washed some clothes by hand because the machine is not working. I find this easy to do.
I was sad.
I re-watched part of My Lovely Sam Soon.
I mopped the floor.
I whined to myself about my growing collection of ailments.
I entertained the cat.
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The rain sounds like the tinnitus that never leaves me.

The woodpeckers are going after the wasps nests on the eaves of the house, a ritual every autumn.

The little cat is asleep on my stiff ankle, which is better than the heating pad.

In order to be less lonely, I need more solitude.

isolation

Oct. 16th, 2023 11:16 am
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I never joined f***book or instaspam and because of that I am out of the loop of my friend group. They're all on social media. That's how they communicate. I generally can catch up on their news at our weekly coffee klatch, but in winter, my friends move indoors at the cafe in town. I'm not willing to do this because of my wonky immune system. I try to stay in touch by mail and email. It's not very satisfying.

So this is the time of year when I must adjust, when I experience the most loneliness. Luckily, I love the change in the seasons and I love winter. (It's easier to love when retirement means I don't have to rush off to work in the morning.) I've got projects to keep me occupied and k-dramas to watch and re-watch and two cats and some chocolate.

I'm not really a fan of living. Even as a child I struggled to see why people were so happy to be alive when there was so much suffering. Evidently this is seen as a character defect. I fear suffering but not death. I'd like to go to bed and not wake up.

Deep loneliness is deeply unpleasant.

tale of cat

Oct. 6th, 2023 11:52 pm
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When I was young I rode my bike everywhere. I danced as much as possible. I was both terribly unhappy and terribly happy. My adhd brain was a barrier that kept me from accomplishing the kinds of things society calls successful. My goals were fantasies, evidently. My successes were personal, almost impossible to explain to anyone but a close friend.

Now I am old and ill. I gave my bike away. I only dance alone in my room late at night for a few minutes at a time. Sometimes it makes me cry even when I enjoy it.

I have a new, uncomfortable symptom to add to my collection. I went to the lab so we can see if it's due to an infection. Then I was supposed to have a tele-health visit with a nurse but after 45 minutes without success, we gave up and she called me on the phone. Everyone I dealt with was patient and kind and that also made me feel like crying.

Life is easier if I can envision a future, even if that vision is a fantasy. I'm struggling to see anything ahead of me. It makes me appreciate how I got through life, because the impulsive, impractical decisions I made still propelled me forward. I always had an idea, a hope. Often, people let me know how stupid I was or how 'brave' (code word for stupid) or how misguided. That was true; I was misguided in that I had no guidance. I was isolated, had almost no support and somehow I survived.

A photo of autumn textures. A landscape. In the foreground, cattails with yellowing leaves; lots of vertical lines. In the distance a hill with trees in shades of yellow, green & rust; lots of curved shapes.
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